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COUNTING DISABILITIES

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Counting Disabilities

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Why is it Critical to Count People with Disabilities?

In 2018, Disabilities Rights California held a focus group among people with disabilities about census participation. Among 68 participants, "only 11 had ever received the census--in their entire lives". Among those 11, only 9 filled it out.


People with disabilities have been historically marginalized and left out of political advocacy due to the mental and physical inaccessibility of politics. While the estimated number of people with disabilities in the U.S. had fallen to roughly 57 million in 2010, the real figures are likely larger due to the severe barriers to political participation and representation that people with disabilities face.


Why is it so difficult to count people with disabilities?

Deinstitutionalization:

As treatment for People with Disabilities (particularly, mental disabilities) transitioned from state-run facilities to community-based health centers, locating this population became increasingly difficult.

Guardianship:

When certain rights of People with Disabilities are transferred over to a guardian (usually, one's family member), this additional step to gaining representation of People with Disabilities can lead to an undercount.

Lack of Training for Census Enumerators:

When census takers are misinformed or not educated on how to interact with People with Disabilities, they may avoid such situations as a whole, thereby excluding People with Disabilities from political participation.


Counting every person--including persons with disabilities--provides a more accurate map of where federal funds and programs should be allocated. Programs such as housing, health-care, and education severely rely on census data to determine geographic need.



Federally Funded Programs Relying on Census Data

Education

Federal Pell Grant Program: The Federal Pell Grant Program provides need-based grants to low-income undergraduate and certain post-baccalaureate students to promote access to postsecondary education.


Title 1 Grants give financial assistance to local educational agencies for children from low-income families to help ensure that all children meet challenging state academic standards. For instance, funds are allocated towards supporting extra instruction in reading and mathematics, as well as special preschool, after-school, and summer programs to extend and reinforce the regular academic curriculum in schools located in high-poverty quarters.


Special Education Grants to State supports meeting the additional costs of providing special education and other relevant services to students with disabilities. Grants allow for expenditure on the salaries of special education teachers, providing speech therapists and psychologists for schools, and improving the use of classroom technology.

Food & Nutrition

CalFresh a.k.a. Supplemental Nutrition Assistance Program: CalFresh is California's implementation of the Supplemental Nutrition Assistance Program (SNAP), a federally-funded food assistance program, colloquially known as "food stamps." Students with disabilities are eligible for CalFresh. Recently, CalFresh also extended program eligibility to State Disability Insurance (SDI), Supplemental Security Income (SSI), or State Supplementary Payment (SSP) recipients!


National School Lunch Program: The National School Lunch Program is a federally assisted meal program providing nutritionally balanced, low-cost or no-cost lunches to children each school day. About 7.1 million children participated in the NSLP in its first year. Since then, the program has reached 30.4 millions of children nationwide as of 2016 (USDA).

Healthcare

Medicaid is the single largest source of health coverage in the US for Americans with limited income or assets. Medicaid has provided coverage for over 72 million Americans, including eligible low-income adults, pregnant women, parents, children, seniors, and individuals with disabilities.


State Children's Health Insurance Program works closely with the Medicaid program to provide low-cost health coverage to children in families that earn too much money to qualify for Medicaid. CHIP benefits vary by states, but all provide comprehensive coverage, such as routine check-ups, immunizations, doctor visits, and prescriptions.


Mental Health Block Grants establishes and expands organized community-based systems of care for providing mental health services to people and children with serious emotional disturbances or mental illness.

Housing

Section 8 Housing Choice Voucher: The Section 8 Housing Choice Voucher is a housing assistance program for low-income households, the elderly, and disabled persons. Housing Choice Vouchers subsidizes housing costs (apartment rent, mortgage payments) for program participants.


Section 811 Supportive Housing for Persons with Disabilities: The Section 811 program subsidizes housing opportunities for low-income and disabled households. Housing developers can be given no-interest loans to finance the construction or rehabilitation of supportive housing for people with disabilities.